Welcome to STROKELAND. I'm Phil and I will be your guide across this blasted landscape . I first entered STROKELAND through the spouse entrance; when a brain bleed brought my beautiful wife here. Two years later I arrived through my own entrance by suffering a massive stroke on JUly 29, 2014. Please join me and my journey through this alien place. It will be interesting to see where we end up.
About Us
- phil
- When one partner suffers a stroke; life is turned upside down, but when you have both partners who have been struck with a serious illness; it can be a devastating blow I was the first one at 47 years of age to suffer with what doctors call a series of thunderclap migraines which resulted in a bleed on the right side of my brain a Cerebral Hemorrhage). After a long series of tests, MRI's, and CT scans, the doctors referred to my "stroke" as "Call Fleming Syndrome"; The date was November 19, 2011. I will never forget that day. Then on July 29, 2014 Phil at 53 was struck down with a massive stroke which resulted in a bleed in the (Basal Ganglia) this was a day that dampened what was the beginning of a joyous summer ;( we had two sons marry Nick in June and Cory in July) This blog voices Phil's experiences on learning to live and walk again. We hope to share our story , experiences, frustrations, and how we have had to struggle, but at the same time still find joy in being together and being alive will help others not only find hope but better understand what a stroke is and steps to take to help avoid one. Each day we find new reasons to get up and do it all again.
Sunday, 5 July 2015
DEVOTION
...............Every morning , my first task is to find something to be thankful for , most days my thoughts turn to the beautiful soul on my left, my wonderful Dar who is always at my side , always has my back , who takes better care of me than I ever did, she does all of this while making me feel loved and special, and important in a world that cant see past a wheelchair. the old Phil would absolutely lose his shit if he was spoken to in the same , too loud , look the other way , condescending manner that new Phil barely tolerates. I need Dar , count on her , rely on herl give for her, yesterday we went on a shopping excursion in our area , pick up some things we need , look around etc. we did this without pre charging my chair completely , which is unusual for us , the chair is a valuable pack horse to have along , a great place to hang bags etc.(the old pack horse is no help these days , he's in a wheelchair ). Well into our outing the battery indicator dipped very low and the chair slowed considerably and the last leg of the journey happened with my tough little , tired , always overworked wife pushing me and a 300 plus pound chair, I have never felt so helpless or useless the chair and I are heavy enough without all the shopping bags and stuff hanging from it , luckily I live on a hill, I can hear your inner voices muttering "what a genius !" and the downhill grade took just enough work off of the batteries tolet me propel to our driveway , which is ("genius") uphill. we made it to the base of my ramp and the load was too heavy for DarI had to get out and do a jerky , ugly walk up the ramp holding the fence like it was a lifeboat . now my brain injury has left me barely able to handle stress and tension and as soon as the batteries showed being that low I began to panic . my angel just smiled reassuringly and told me it would be ok , it always is when I am with her, I'm a very lucky man , for a guy that has been caught in a shit tsunami for the past year and Dar's love , devotion and wonderfully huge heart keep me going I am now sitting here , chair fully charged ("I heard that !")watching my little fireball change the bedsheets , prepare breakfast , make coffe and amuse the cat with catnip bubbles , I am thankful today because of her , in this nice , homey, functional space because of her , upright and breathing and typing because of her and learning the wonders of this kind of love with the new brain because of her , I tell people regularly not to waste their time asking me how I'm doing , if you see me and I'm with my Dar , you already know , gotta go , I need this hand for coffe drinking see ya in strokeland survivors..Phil
Labels:
bond,
caregiver,
frustrations,
humour,
love,
struggles,
wheelchair
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