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When one partner suffers a stroke; life is turned upside down, but when you have both partners who have been struck with a serious illness; it can be a devastating blow I was the first one at 47 years of age to suffer with what doctors call a series of thunderclap migraines which resulted in a bleed on the right side of my brain a Cerebral Hemorrhage). After a long series of tests, MRI's, and CT scans, the doctors referred to my "stroke" as "Call Fleming Syndrome"; The date was November 19, 2011. I will never forget that day. Then on July 29, 2014 Phil at 53 was struck down with a massive stroke which resulted in a bleed in the (Basal Ganglia) this was a day that dampened what was the beginning of a joyous summer ;( we had two sons marry Nick in June and Cory in July) This blog voices Phil's experiences on learning to live and walk again. We hope to share our story , experiences, frustrations, and how we have had to struggle, but at the same time still find joy in being together and being alive will help others not only find hope but better understand what a stroke is and steps to take to help avoid one. Each day we find new reasons to get up and do it all again.

Tuesday, 7 July 2015

ENEMY AT THE GATES..

........Why wont my leg just shut ip ?

Since my entry into strokeland my poor damaged brain has been working overtime scanning for any indication of normal sensation from my affected limbs and my left leg is sending everything it's got; wave after wave of a huge amount of tingling (angry tingling )assaults my brain 24/7, fills my sleep and it has it's hand on my emotion dial , keeps it cranked to 11 at all times and trying to keep this enemy at bay is exhausting.

 Doctors , hospital staff , the nice folks in imaging and emerg will not tell me a damned thing , just "thats common in stroke victims , but everybody is different !" , same old song and dance.  I've even heard the encouraging "maybe the leg is finally waking up!" great , still feels asleep , is physio just to keep me busy til everything goes wakey wakey ?

 It's like standing on a shoreline and hearing and watching waves crash against the beach , an endless supply , with increasing force and whats left of my brain is the beach (I'm too tired to surf just now!) 

 Don't get me wrong , it beats the excruciating muscle pain , and I'm overjoyed that leg and brain are still on speaking terms but I need answers both for me and to pass on , even though what ails each of you dear survivors is probably common to stroke victims but everyone is different! 

It's been a year of all of this feeling being forced on me , filling my every waking , and sleeping hour , I don't feel like I can breathe when I think about it , so brain , "TURN THE CHANNEL ! , and leg "STOP IT WE KNOW YOU ARE THERE AND THAT NORMAL FUNCTION IS IMPAIRED, SHUT UP ! FOR GODS SAKE !" 

It is hurting me ; mentally , my sleep , my physio and my recovery and it affects my Dar who takes such wonderful care of me. I am at war and am in danger of being overrun , the enemy is tireless , relentless and is viciously under mining my morale , my recovery demands strength , and my condition saps it just as fast , I need help !!! see ya in the trenchesl
 Phi.
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